View Full Version : Arthritis - anyone any experiences?
....especially with children/as a child yourselves?
It looks as though Daisy has some kind of arthritis on her hands and feet and is having a lot of difficulty walking, can't run, can't do stairs easily etc. We've literally just found out and the intermaweb has been helpful but ultimately depressing and I'd far rather hear someone say 'Ive got it/had it, this is how it was for me'.
Shes got an appointment for blood tests and xrays just before New Year so will have a definitive diagnosis then but looking at the websites I'd hazard a guess that it's the poly-thingy one.
Ugh I feel sick :'(
:( That's awful *hugs*
My Dad had rheumatoid arthritis primarily in his elbows and knees, and had various different drugs. So I might be able to help :) But obviously my Dad didn't have it till he was 58 so rather different than in children.
Anything I can help with or answer though, let me know :) If I don't know the answer, my Mum will as she knows huge amounts about it all!
*hugs again to you both*
Oh God, I really don't know what to say :( Really keeping everything crossed for as positive outcome as possible in terms of what can be done etc. Poor little bab. x
Pebs, has this been confirmed or is it just a self/internet diagnosis type thing? I know you're not daft, but we can all read too much in to these things. Try not to worry too much until there's been a proper check up :)
She's seen a GP tonight, he said arthritis. There are different types hence why she is having blood tests and xrays. A little knowledge is a dangerous thing and all that jazz so I'm not looking at the internet too much (well, trying). She has hot swellings in her feet and wrists, can't flex her feet at any time of day and can't unurl her hands in the mornings for several hours.
She just bent over in front of me and asked me to rub her back and one of the bobbles in her spine is also swollen. I poked all the way down her back and that bit hurts (I didnt tell her there was anything wrong). Will call the GP in the morning.
Really sorry to hear that Pebs. Poor Daisy. :(
Many moons ago when I were a lad at school I had a friend there who had early-onset Arthritis, and it was just about manageable for him with drugs.
As you say a little knowledge is a dangerous thing indeed and there are specialists in this sort of thing so hopefully they can find the cause and get it at least under some semblance of control as quickly as possible. Don't take no **** though - if the NHS try to mess you around as they sometimes do then give them what for.
You know where we are of course. *hugs*
She's seen a GP tonight, he said arthritis.
:(
Sorry, I've got no experience of anything like it. I know my nan had it and my mother also has a mild case in her hands and shoulder, but I'm sure neither had it as a child although I will ask tomorrow :)
Thanks Mark. We do actually have private cover via MtE and we went tonight to ask for a referral. Daisy saw a Dr a couple of weeks back for the same thing and was fobbed off with 'she need insoles in her shoes'. It's taken me this long to get another appointment and private wont see her without a referral from a GP. Saw the HeadHonchoGP tonight who took it all very seriously and scooted off to find out what paediatricians do what etc. The main private chap is also the NHS chap and he said due to the time of year it's unlikely she'll get seen sooner than the 30th. Like I said I'll confirm that but he's given Daisy enough pain relief to last the 2 weeks until then if not.
Insoles isn't a bad suggestion but get advice on proper orthotic insoles rather than just getting cheapo high street ones, and for the benefit of the Dr. concerned, that should be considered in addition to medical care, not instead of.
TinkerBell
16-12-2008, 22:02
Oh no pebs, I am soooo sorry to hear this, I wish there was something I could do to help *hugs* I hope that you are okay hun.
Piggymon
16-12-2008, 22:17
Awww poor ickle Daisy :(
Hopefully the docs will be able to find out exactly what's wrong, get the right treatment for her and get her all back to full health soon :)
You know where we are if you need anything x
Matblack
16-12-2008, 22:33
Mum is the regional rep for the RA society, she would be a good person to speak to if its RA, but its more likely to be some sort of JIA I would have thought.
I won't kid you some types of Arthritis are very painful but they are controllable if not curable. I'm more than happy to put you in touch with Mum she has been drawn in to the support network and if she doesn't know about JIA she will know someone who does, maybe not locally but they will know a support network in your area.
Here is a link to a pdf about JIA and other childhood presentations
http://www.arc.org.uk/arthinfo/documents/6054.pdf
http://www.arc.org.uk/
http://www.rheumatoid.org.uk/ - These guys are excellent and the people Mum are involved with and they have buddy system and loads of other support systems.
0800 2987650 - Helpline (Mum says this is really good)
If I can be of help then just let me know and give the Minx my best wishes
MB
Matblack
16-12-2008, 23:01
Mum says you must let the school know as they will make lots practical arrangements to help such as storing books and making adjustments to uniform, also mum finds these useful
http://www.posturite.co.uk/PosturiteSite/pages/product/product.asp?prod=83533&cookie_test=1
Bloody hell she just phoned me back and told me a load of other stuff, she says to let you have her number and she'll help but that the guys at the NRAS helpline are excellent :)
Checking that site NRAS are heavily involved in JIA too so http://www.rheumatoid.org.uk/ is a good starting point. Mum is off to lecture doctors at the local hospital next month and they are a very active very supportive organisation.
MB
Abso-bloody-lutely. Thanks MB's Mum. :)
My Bro-in-law's twin had a form of arthritis, struck him in his early to mid 20s, and slowly debilitated him over several years, stopped him from being able to work etc. etc. All of a sudden he got so pissed off with the whole thing that he decided to see what he could do for himself. After a month or so of internet research he discovered loads of examples of diet control for his specific type of arthritis.
After okaying it with his GP ("It can't harm, diet looks reasonable") he switched to the diet and 6 months later he joined us for my bro-in-laws Stag do, climbing mountains in Ireland, which he tackled with great vigor, not even a tiny hint of discomfort.
semi-pro waster
17-12-2008, 00:32
I'm afraid I can't offer any constructive help but I hope it isn't as serious as it first appears. All the best to you and your family.
Kell_ee001
17-12-2008, 00:38
Poor Daisy :(
My Mum has rheumatoid arthritis as well, had lots of treatments and been in e few medical trials to try and help, so I can see how horrible it is to see someone you love in pain :( Looks like MB to the rescue so to speak though as he's been able to offer more than I ever could!
Hope you're holding up ok and we're all here for you *hugs*
Oh dear lordy :( Poor poor bubba :(
I don't know much on the topic myself but big big big huge hugs to you and the lil lady herself. MBs Ma sounds like a star :)
I hope you're able to find something quickly to help her muchos xx
Big big hugs and love xx
Matblack
17-12-2008, 09:54
A little research shows that the 'poly' you mention is a fancy way of saying 'effects more than two joints' and all juvenile onset is JIA, the main variants being systemic and specific, systemic can have some other side effects but if the pain is localised andd she doesn't have any other symptoms then it is unlikely to be that.
RA and its variants are auto-immune related and there is a lot off research into auto-immune at the moment, with the recent emergence of Anti-TNF which has been cleared for use in the UK. At the moment the usual route for medicine is NSAIDs (Non Steriodal Anti Inflamatorys) and then Methotraxate (My mother is on Metho) and then possibly on to Anti TNF but as trials progress Anti-TNF may become the drug of choice. In addition to this it is possible to get steriod injections at critical times, mother recently had to come off Metho for a while whilst she had an operation (Non RA related) and they gave her steriods which made her feel 100% better for about a month, unfortunately steriods of this nature are not a long term solution as they have side effects. But they can be used as a stop gap.
In addition to drug therepy you'll have access to lots of physio and occupational therepy and there are lots and lots of resources to help make things as comfortable as possible which you'll be given on prescription, Mum usually comes away with a bag full of toys when she goes for a visit.
When she was diagnosed we expected Mum to be house bound within a few years possibly in a wheelchair (I used to joke about tying the poodles to it like a chariot) as you've mmet her you have seen that her quality of life is very very high, she does get pain, she does have some side effects from the Metho but she still travel around the world, still has a very active life, if she wanted to she could still work. Therepy has come a very long way with RA and its still a strong focal point for research with the possibility of a cure very much in the target of drug companies. As for the time being despite what is said about the UK health system its one of the best in the world and with some recent fighting from NRAS all the treatments are available for RA and JIA on the NHS.
MB
Matblack
17-12-2008, 10:03
The main private chap is also the NHS chap
This happens a lot more than you'd expect, the best treatment Mum has received has been exactly the treatment she would have got on the NHS in fact all her recent treatment has been at NHS centres with NHS doctors. She said that you are in the best place for both treatment and support being near to London.
MB
Thanks hugely fir the replies, particularly MB's input. I've been on a night turn hence me Reading but not replying (MB I got your voicemail too, I had to hide and sniff lots x). I'm typing this on an iPhone in bed as I've just got in from work, I'll do a decent reply later.
Thanks again, nor feeling quite so desperate this morning. Will call gp about her back later too and hopefully they'll reassure me a bit.
Meh I don't know what to say :( poor little mite. Give her a big hug from me.
Hope MB's info/mum can be of use.
You know where I am xxx
Morning *yawn*
I've called the GP surgery, they want to see her spine so I'm taking her in tonight at the end of surgery.
MB I can't thank you enough. I will give your mum a call, possibly later after seeing this GP today if not in the morning.
I was in an absolute state of panic last night after seeing what else Daisy may be tested for (leukemia et al) but I've realised I'm very much putting the cart before the horse and will deal with it when we know for sure. Dosnt stop the dull ache in my chest though lol.
Thanks for the lovely texts and messages, the support already has been massively helpful and reassuring
MWAH!
Matblack
17-12-2008, 15:21
Morning *yawn*
I've called the GP surgery, they want to see her spine so I'm taking her in tonight at the end of surgery.
MB I can't thank you enough. I will give your mum a call, possibly later after seeing this GP today if not in the morning.
I was in an absolute state of panic last night after seeing what else Daisy may be tested for (leukemia et al) but I've realised I'm very much putting the cart before the horse and will deal with it when we know for sure. Dosnt stop the dull ache in my chest though lol.
Thanks for the lovely texts and messages, the support already has been massively helpful and reassuring
MWAH!
Where is the swelling on her spine? Is it in the cervical curve (bottom of the neck).
MB
No, about 2/3 of the way down.
Reading the internetz again and I really can't read any more. It's terrible
Matblack
17-12-2008, 15:35
No, about 2/3 of the way down.
Reading the internetz again and I really can't read any more. It's terrible
:) Cool, swelling in the C-curve seems to be asociated with Ankylosing Spondylitis which is a form of RA, its not very nice but as I say it presents in the C-curve so its unlikely to be that. If she has JIA It could be a nodule or it could be totally unrelated so don't worry too much ;) See what the Doc thinks and let us know how shes getting on :)
Kitten is right reading about it is likely to upset you even more, you are in a position to see some of the best doctors in the country and they will be able to tell you far more and far more up to date informaation than the net. It may not even be JIA, she needs to be run through a batch of tests and then see where you stand don't panic or assume the worst diag/prog-nosis.
MB
Knipples
17-12-2008, 19:34
Ive got nothing to offer as its not something I have any experience with (although if you do need help with insoles that might be something I could talk about) I just wanted to post to say what a diamond youve been Matt, im sure youve helped Pebs immensely and I just wanted to say good on you.
:)
AboveTheSalt
17-12-2008, 23:46
Pebs, I'm really sorry to hear about your daughter and can't offer much meaningful advice.
I occasionally do some work for GP surgeries. Today over coffee, I happened to get to speak to a senior partner (female, mid-50s, two grown-up children) where I was doing some work. I gave a brief outline of what I have read here.
Her first comment was, "if you live in a major city, visit a walk-in children's speciality clinic at your nearest large hospital - you shouldn't need a referral".
Her second comment was "go back and speak to your GP - tell him/her of your concerns and ask for further information and guidance".
Her final comments were the most telling, I summarise them thus: Juvenile arthritis is very rare, in 20+ years as a GP, she has never seen a case She would be very reluctant to give advice on such a case unless she knew EXACTLY what she was talking about Despite what some members of the public believe, GPs do not know everything, sometimes they can ONLY refer patients to specialists Good luck Pebs and Daisy.
Saw a different GP last night who went over the whole symptoms again with us. She agrees with the original GP and told me the spine will be all part and parcel of whatever it is she has. I'm at the stage today where I think arthritis will be a relief. She woke me up at 5am cause her shoulders and knees hurt. :(
Matt....I will call Mrs MB snr, but I can't today. My foal is also going downhill and I don't think I can talk on the phone without wailing quite loudly today. Please don't think I'm ungrateful, I really am but I need an ostrich day :)
Matblack
18-12-2008, 12:01
Saw a different GP last night who went over the whole symptoms again with us. She agrees with the original GP and told me the spine will be all part and parcel of whatever it is she has. I'm at the stage today where I think arthritis will be a relief. She woke me up at 5am cause her shoulders and knees hurt. :(
Matt....I will call Mrs MB snr, but I can't today. My foal is also going downhill and I don't think I can talk on the phone without wailing quite loudly today. Please don't think I'm ungrateful, I really am but I need an ostrich day :)
Don't worry theres no urgency but she's there if you need her, she was a pastoral tutor at University before she retired and shes used to talking to people who are in crisis so don't worry about being upset if you talk to her, shes a good person to talk to in a crisis. As and when you're ready though :)
MB
Oh poor Daisy :( what a horrible thing to have to go through, I hope that someone gives you a proper diagnosis as soon as humanly possible so that at least part of the worrying is out the way. And I hope it's something minor compared to what you've been reading about. I can't begin to imagine the anguish you're going through, and can only offer hugs and best wishes for both of you :(
goldilocks
20-12-2008, 22:12
http://www.ccaa.org.uk/
my best friend through first and middle school has jca - we havent spoken in a very long time - but of all the memories i have, fundraising events for 'the waddling penguin'
stay with me.
i hope they could support your daughter in the way they supported Beckie
Today is the day. Time to shoot the ostrich.
Fingers crossed for you both, especially Daisy :)
Matblack
30-12-2008, 10:07
Today is the day. Time to shoot the ostrich.
Good luck to you both. There will be blood tests involved and I suspect you won't get an instant answer. Idiopathic is Doctor speak for 'we don't know' so if it is JIA don't expect too many answers as to why but they should be able to tell you 'what next' :)
Let us know how you get on
MBx
Knipples
30-12-2008, 10:13
Hope it goes ok and that you start to get some answers :)
Thinking of you both. Hope everything goes OK today x
Pebs, I don't know what to say hun. I hope that Daisy gets the best possible diagnosis.
Thinking of you hun xx
Fingers crossed for you both :)
Piggymon
30-12-2008, 11:05
Good luck for today - let us know ! :)
Kind of what I expected, more tests and back in 4 weeks. He mentioned rheumatoid problems and thyroid strangely, plus liver, kidney and bone profile all via blood tests.
Head back in the sand :D
Knipples
30-12-2008, 11:17
At least theyre looking into it and investigating.
Hope Daisy is ok after all the poking/prodding/being talked about.
Matblack
30-12-2008, 11:27
Kind of what I expected, more tests and back in 4 weeks. He mentioned rheumatoid problems and thyroid strangely, plus liver, kidney and bone profile all via blood tests.
Head back in the sand :D
Sounds about right, with something like the symptoms you described it could be something complicated or rare but simple to sort out and they'll want to cover all the bases before making a diagnosis. If its Thyroid (and it certainly could be) then its very treatable, Aitch was Hyper and after treatment is now Hypo. Hyper can be dealt with with a one off treatment (it can be a tiny bit hit and miss but this only means you can end up hypo) and hypo requires tablets to bring up the thyroid level to normal, which has no side effects at all :)
At the end of this Daisy will have had more tests than the average kid of her age but thats good because it give them a chance to identify any issues and get the treated. Chin up but keep that head in the sand and away from online doctor websites for another 4weeks ;)
MB
aww fingers crossed.
is Daisy asking more questions now after the test?
BB x
Daisy has no veins and after 2 attempts went beserk to the point of puking. Never seen her like it, and I have to take her back when she's calmer later today. Very shaken up right now.
Piggymon
30-12-2008, 12:42
Aww poor little mite :(
Give her a hug from me :)
Knipples
30-12-2008, 12:43
Daisy has no veins and after 2 attempts went beserk to the point of puking. Never seen her like it, and I have to take her back when she's calmer later today. Very shaken up right now.
Can they try somewhere she cant see it.
Marchant's veins arent always very good, but he spasms more and gets more upset if he can see them doing it. We've been hidden under a table taking it from his feet before now.
Horrible thing to watch someone you care about going through.
Big hugs, if you need to vent then you know where we are.
Matblack
30-12-2008, 12:46
Kids find hospitals hard, I was always fascinated by them but I think that's unusual. Its likely she's going to be going back a few times if she has any interest in science then play on it, talk to her about how the human body works and what a cool thing it is, what blood does and how by just taking a little bit out how we can find out all sorts of things. She'll also be feeding off your fear and tensing up, a blood test shouldn't hurt but because she is probably anticipating that it will she will react to the slightest touch stay calm and keep her distracted and she should be less tense; but you probably know all this stuff already :)
She'll be just fine, how well do you do with blood tests? If you are OK with them they might be happy to draw some blood from you first so you can show her it doesn't hurt :)
MB
TinkerBell
30-12-2008, 12:47
Awww noes :(
*big hugs to you both*
What Matblack said is a really good idea :)
Matblack
30-12-2008, 12:49
You can tell her I'll take her to Blockbuster tomorrow and we'll get her some games for her Playstation 2 :)
MB
She didn't see them doing anything, and had the first attempt no probs with a big 'OW!'. 2nd try she got upset and pulled away and that was it, hysteria.
I tried reasoning/bribery/cross/etc. LOL I need to up the ante!
Matt, your offer may be working, she said '.....just me?' LOL
Matblack
30-12-2008, 13:17
Matt, your offer may be working, she said '.....just me?' LOL
Yep just her, as long as its alright with her Mum, we'll go in the MINI and she can choose games :) She'll have to let her sisters play them too but she gets to choose.
MB
Poor thing.
*hugs to you both*
AboveTheSalt
30-12-2008, 13:54
Pebs, you and Daisy have been in my thoughts since first I read this thread, I have checked back here every day and haven't been willing to ask how things are. I know that you have probably had a very stressful Christmas.
I really do hope that whatever it is, it isn't too serious and that 2009 is the best year yet for you both.
Aw the poor lass :( I remember my Mum used to have to sit on me to keep me still to take blood tests. Glad they don't do that any more!
MB you are a hero of the highest order :) How do you always know the right thing to say?
It's done :D I took her back on my own, so no sisters and Daddy to add to the stress, she was terrified! There was a 'crazy' man (funny and loud and telling the women to stop faffing and get on with it type stuff) there doing it, and a lady came out of the room that we were in that morning saying the woman working in there (who tried in the morning) couldnt get her veins so had sent her to see the crazy man. So we decided to cut out the middle woman and go straight for crazy!
He was ace, really loud and daft and whilst prodding around for her veins and bending her arms said no wonder it hurt, the woman in the morning had gone for a tendon instead of a vein. Daisy had a big wobble, crazy man told her to trust him and he wouldnt hurt her and before you knew it it was done. She didnt feel a thing! I just about resisted offering to have his children and we whizzed to the shops to buy some new boots as promised. Such a pity we didn't see him this morning - I have the same problem with no veins and phlebotomists always see me as a challenge and love a good dig about rather than concedeingthey may not be up to the job and getting someone else. Pheebs is the same and we had a horrific experience at GOSH where I had to pin her arms and feet under my armpits while the docs sat behind me and took the blood whilst she screamed the place down.
Sorted anyway, 4 weeks till the results. MB, she's going to be on you like a limpet tomorrrow :D
Can finally get ready to PARTAY!
That's great news :D
A lot of the times my mum had to sit on me was at GOSH. They're very good, but I guess can be a tad ungentle :)
Piggymon
30-12-2008, 18:57
Excellent :)
Knipples
30-12-2008, 19:16
Am glad they got the blood. Always helps when its someone confident who knows what theyre doing.
Rah, well done Daisy!! What a lovely gesture too MB :)
I've been thinking about this thread a lot lately, I am sorry I haven't posted earlier, but anything to do with my mum brings back to the forefront I will never see her again, which makes seeing the screen rather hard.
But I can no longer let that keep me from possibly helping someone else out with what my mum went through for so long.
She had RA from about 25 on. She was an RN. It crippled her to the point it destroyed her career. She couldn't lift a patient to change their bedpan, so she was useless to any hospital.
After diagnosis and much poking and prodding the medical professionals determined that her ankles and wrists along with her rotator cuffs were affected. They said that by the time she was 30-35 she would be confined to a motorized wheelchair because of it.
Now, my mum could teach stubborn to rocks. There was NO way she was going to let it affect her that badly, so she did enough research to write 100 thesis papers. She determined that water immersion would alleviate the symptoms enough to get full range of motion from her joints. So she took up swimming.
3 days a week she went to the local pool right after kicking my brother and I out the door for school. In 3 months she was beating the local high school swim team by herself while they were doing relay races. She had 100% mobility in the water and zero pain. The coolness of the water brought the inflammation down, which reduced the pain dramatically. Also the slight pressure over the whole joint helped blood flow away from the area. The almost weightless environment of being submerged allowed unrestricted movement of all her limbs, which helped immensely get past the point of restricted movement and allowed her to stretch through the RA, I guess helping break it up or something.
Whatever it was, she was still fully active and working right up until ovarian cancer took her from us at age 58. She was even going into total remission right before going into the hospital for the last time. To the point that before my parents found out about the cancer, they were planning vacation trips they would never have been able to do with her suffering from the RA.
If the little tyke likes swimming, I would see about taking her in a couple days a week, see if it helps.
Oh, and another thing that struck a bell with me was my mum had an over active thyroid as well. Hers was treated with radiation early on in life and she had a little yellow pill she took every day to bring it back up into normal range. Once it was taken care of, she had no trouble with it afterwards.
Knipples
30-12-2008, 20:06
Darrin, im sure it wasnt easy to post all that, so I just wanted to say good on you. Tips from people who've been through it will help Pebs im sure.
*hug*
Darrin, so good of you that Pebs thanked you twice, and I agree. Thank you. :)
I must confess it did slip my mind that this was today but yay for progress, however small, and yay for crazy people. :)
*hugs*
Little update.
Daisy has been struggling this week and going downhill rapidly since being back at school. It came to a bit of a head last night when her thumbs seemed to be wonky and one of her hands was so painful she couldnt dress herself. She had a terrible night and out of desperation really I took her to A&E today.
I explained all the the PaedNurse and he said that although I amy not get answers they should be able to make her more comfortable which is exactly what I wanted. Despite a packed waiting room we didnt have to wait more than about 5 minutes, they were ace! Doc consulted the paedregistrar who has given her diclofenac and codeine. Unfortuately this isn't a long term solution but it'll give her respite for a few days which she desperately needs.
I also asked if they could check for her blood results. The doc looked but they weren't available but after some digging found her samples have gone to UCH in London. Apparently there is an excellent rheumatoid specialist at GOSH who treats local kids if it does prove to be that. I left feeling far more reassured and hopeful that the meds would help.
They have. Shes had one pill and she can do stairs!! She can open her hands! Not even had to break open the codeine which is a relief as it'll make her sleepy apparently. Fingers crossed the pills will be enough :)
Less than 2 weeks for the results now. I know a lot of you saw her at NYE and probably think 'what the hell is she on about, she was fine!!' but she had a very very sedentiary Xmas holiday and the painkillers she was having then were enough.
leowyatt
10-01-2009, 20:24
Sorry to hear Daisy has been having it rough recently. Those of us at NYE would never have thought "what the hell is she on about" we just realised with the holidays and the excitement she would be much perkier.
Glad to hear the tablets are working and fingers crossed you can get to the bottom of things :)
Sorry to hear Daisy has been having it rough recently. Those of us at NYE would never have thought "what the hell is she on about" we just realised with the holidays and the excitement she would be much perkier.
Damn right, none of us thought that :) Glad to hear the new tablets are helping, roll on 2 weeks.
I was really impressed with how Daisy coped with NYE and even more so when she mentioned she was in a bit of pain but seemingly trying to fight through it before getting dosed up the morning after.
Fingers crossed what you've got is enough to keep it at bay until the results come back and fingers crossed you get some answers then.
In the meantime, *hugs* all around.
Another update, I hope people don't mind. It's helpful to keep track and this is as good a place as any :)
Spoke to PaedSpecialist today as Daisys 5 days on the good painkillers are up. He said to keep giving them to her but he wants to see her sooner than the appointment on the 27th. He still hasn't got all of her results (3 outstanding apparently) but given her deterioration he's not happy to leave it two more weeks (I dont know where I got less than two weeks from in the last update, it's the 27th!! lol).
The painkillers are helping lots. We're not using the codeine much other than at night which is good and she has much better mobility. But when she has the pain its in new places as well as the old faithfuls...her hips caused her a lot of pain two nights ago and she mentioned her neck and elbows in passing today.
Oh wel, we've all enjoyed a few nights sleep anyway.....
Fingers crossed the appointment is very soon :)
Piggymon
16-01-2009, 18:17
I'm glad you've both managed to get some sleep :)
Here's hoping the appointment is soon !
TinkerBell
16-01-2009, 18:18
Glad you have all got some sleep :)
At least she isn't in as much pain and the doctors know that they need to keep on top of this instead of leaving it for a long time between appointments :)
*Hugs*
Hope the app is sooner than 27th.. xx
*thinking of you all*
BB x
Knipples
16-01-2009, 18:51
Im glad youve had a few days rest. Heres hoping she gets seen again soon x
I hope people don't mind.
Don't be silly - of course we don't mind. What sort of friends would we be if we did? :)
Here's hoping for a quick appointment and answers.
poor darling!
My mom has rheumatoid arthritis and for her it's been rough. She has a few other health issues as well which does not help. She actually just had surgery to fix her toes, which have been crooked for years. I do not have experience with any other kind of arthritis however. Definately having her see a doc ASAP is the best plan of action. They can get her on a plan to deal with it.
Best wishes... I am so sorry this has happened to her and to you.
I'm having a 'cant cope' day. Daisy woke up with her head a bit on the wonk because of her neck and she's constantly sayingit's clicking and painful. She's had to have codeine for the 2nd morning running and I had to carry her to school again for the first time in about 4 school days. I think I have PMT which always makes everything seem a bit crapper than it is but I blubbed in the car for about 20 minutes :( Arse, blubbing now too! lol!
Waiting for a call from the docs today. Hurry up!
:( Hope you get the call soon.
Piggymon
19-01-2009, 13:51
*hugs* :(
I'll be over in Chelsmford later for a FPC appointment at 6.30pm .. do want me to pop over for a bit ?
TinkerBell
19-01-2009, 15:22
Awwww hun *hugs* If you ever need a chat you know where I am.
Hope that the doc calls you soon hun, and Daisy gets on the road to recovery soon.
Thanks girls. Have had the call, he wants to see us Thursday lunchtime 'to discuss the results he has so far'. SHe's better than this morning and my earlier snotfest has helped I think :)
*barf*
I only know what I've heard about this on the media but my understanding is that juvenile arthritis can be very well treated. I hope it all goes well.
Sometimes you need a good old cry for the release.
Fingers crossed for thursday Snotty ;)
BB x
Hugs from me too, hope Thurs comes quickly and you get the answers you need :)
Thinking of you and the little one xx
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